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Aims and Objectives

We (Headway Oxfordshire) aim to:

  • directly provide support services to those affected by acquired brain injury (including stroke and some other neurological conditions) across the county of Oxfordshire. 
  • advocate on behalf of those affected by acquired brain injury (including stroke and some other neurological conditions) in relation to local and national strategic initiatives.
  • provide information on acquired brain injury (including stroke and some other neurological conditions) to those interested parties and promote the awareness of the condition to the general community at large.
  • raise funds in support of those affected by acquired brain injury (including stroke and some other neurological conditions) in Oxfordshire.

History of Headway Oxfordshire

(extracts from Sheila Sargeant's description, one of the founder members)

Headway Oxford was started in 1982 by a small group of 10 people. At this time there was no support available for those with a brain injury or their carers. The group would meet once a month on Tuesday evenings, to hear speakers, share experiences and support one another. 

In 1988 the group evolved into an official Headway group, based within the grounds of the Rivermead Rehabilitation Centre. "Having the support of the Director of Rivermead, the Social Workers and the Occupational Therapists, we were able to open one day a week.  We had to share the White House with the OT department.  Our head injured people were referred to us by the Social Workers and the Occupational Therapist, before the patient was actually discharged from the wards, the transition to the Headway House was made very easy, as the Social Worker or OT would come across with the patient and spend a little time with them, we got to know the person very well.  On discharge, transport was arranged for the patient to come to Headway and it was very successful indeed".

As the Rivermead came under new Directorship and funding restrictions took hold, direct referrals from the medical team became fewer. "Head Injured people were sent home from hospital with no motivation, and not knowing anything about our services".  Despite this, the numbers of people requiring support in the community continued to rise and Headway Oxford responded by opening two days per week.

In July 2002 Headway Oxford moved to new premises at 4 Bagley Wood Road, Kennington. This is where we reside today, having developed our services considerably over the years. In february 2011 we changed our name to reflect the geographical extent of our service provision and as such we are now known as Headway Oxfordshire. Headway Oxfordshire now supports over 400 individuals affected by acquired brain injury every year and provides services 5 days per week.  

 

Headway Oxfordshire's President

 

Headway Oxfordshire, and its relationship to Oxford Rehabilitation health services

Dr Derick Wade

Prof Derick Wade

 

 

Rehabilitation after an acquired brain injury is often a long process with no clear end.  Although its initial stages are clearly beneficial, there is a risk that prolongation may prevent a patient from progressing socially.  They may continue unrealistic expectations, and not develop new roles and interests.  As an American author said ten years after prolonged rehabilitation for his spinal tumour: "The kindest thing anyone could have done for me would have been to look me square in the eye and say this clearly:  'Reynolds Price is dead.  Who will you be now?  Who can you be now and how can you get there double-time'"  (Reynolds Price. A whole new life: an illness and a healing.  New York Atheneum 1994) 

Headway Oxfordshire's important role is to help people discover who they have 'become' and to help them get there quickly. 

A head injury, and indeed any major accident or life event, may have a substantial impact upon the roles and activities that someone can or does undertake.  Many family members undergo major changes in their life after a person is injured, and just being involved in life-threatening or other challenging events can change a person. 

Sudden onset brain injury adds three specific factors to the situation.  First, it may leave losses that restrict what someone can do.  Second, most people consider that their brain is the centre of their being and personality and hence may feel especially threatened as a person.  Thirdly, the organ that allows people to learn and to adapt after a change is itself damaged.  Consequently it may be difficult for someone to establish a new life after head injury or any other acquired brain injury. 

Rehabilitation should help people relearn important activities such as dressing, shopping and looking after themselves.  But sometimes people will be left with significant difficulties in carrying out necessary or wanted activities, and they need to develop new interests, new social circles, new skills.  Rehabilitation services can and should help people to learn to adapt, but they cannot provide new interests. 

The risk of continuing rehabilitation too long is that someone may continue to hope for or expect a recovery that cannot happen. Thus they do not start to adapt to their new situation, and eventually they become angry, or depressed (or both). 

The risk of having no contact with specialist healthcare services is that complications may arise, or simple opportunities for change are not identified. 

Headway Oxfordshire has an important role in this transition.  It removes people from a healthcare setting where people are patients, and places them in a setting where people are people who may benefit from an occasional healthcare contact (just like everyone else).  It also, very importantly, allows people to start developing as a new person, different from the previous person but not 'worse' or 'better' than the previous person. 

Ideally people would only need Headway for a few months or years, but for some people it is one of a very small number of opportunities for social contact over many years; these people become lifetime Headway people. 

http://www.noc.nhs.uk/oce/team/derick-wade.aspx

Access Criteria for Services

We work with individuals, carers and families of people who have had an acquired brain injury (including stroke and some other neurological conditions). This may have been acquired through events such as traumatic injury (traffic incidents or assault etc) stroke, brain haemorrhage, tumour, or infection. It should be noted that this list is not exhaustive and associated conditions may be supported in addition.

We offer a holistic approach to providing support and services to those affected by these long term neurological conditions.

Service users are encouraged to develop old and new personal skills alike, in a bid to respond to the changes in their lives.  Individually tailored rehabilitation and activity programmes are designed to both compliment the formal rehabilitation provided by health professionals and promote increased independence within the community. Services can be delivered in a variety of settings that are appropriate to the individual and accessed within our centre, as outreach or within individual's home.

Headway Oxford Structure

Organisation Structure Small

The Management Committee

Headway Oxfordshire is registered with the Charity Commissioners (No 299377). The Charity is constituted by deed dated 12 April 1988.

The Charity is administered by a management committee comprising:

Mr N Denton - Chair

Mrs A Bartlett -Vice Chair

RD Wilson- Treasurer

Mrs V Taylor - Secretary

Prof. Udo Kischka

Mrs J Chipperfield

Mrs A Brownson

Mrs J Andrews

Mr R Coleman

Ms S Wilson

Mr J Miller -Ex Officio